Current cancer registry minimum dataset

A core cancer registration service requires data to be collected in the following areas:
Hospital details

  • Hospital
  • Consultant*
  • Patient unit number

Personal details

  • NHS number
  • Forenames
  • Surname
  • Name at birth (previous surname)
  • Address at time of diagnosis
  • Postcode
  • Sex
  • Ethnic origin
  • Date of birth

Diagnostic, tumour and treatment details

  • Site of primary neoplasm (or main presenting secondary when primary site is not known)
  • Morphology (type of neoplasm)
  • Laterality (side) for paired organs
  • Stage
  • Grade of tumour (degree of differentiation)
  • Basis of diagnosis (histology, cytology, haematology, clinical opinion, other tests)
  • Date of diagnosis
  • Treatment indicators (surgery, radiotherapy, chemotherapy, hormone therapy, other)

Death details

  • Alive/dead
  • Date of death
  • Cause and place of death
  • Post mortem

*Not collected in Scotland
Additional information is available in many areas for recent years, reflecting the increasing availability and standardisation of healthcare data, particularly in relation to referral and treatment.
In England, the cancer registration dataset forms part of the National Cancer Dataset (NCDS), which is currently being reviewed.